- Provider - Tuberous Sclerosis Alliance

Provider Details

Tuberous Sclerosis Alliance

Address: (See Map)

8737 Colesville Road, Suite 400
Silver Spring, MD 20910

Mailing Address

801 Roeder Rd Suite 750
Silver Spring, MD 20910

Contact Information:

Phone: (800) 225-6872
Fax: (301) 562-9870
Website: https://www.tsalliance.org/
Email: info@tsalliance.org

Organization Contacts

Director, Community Programs April Cooper
Phone: (800) 225-6872
Email: acooper@tsalliance.org

Description:

First described in the 1880s by French neurologist Désiré-Magloire Bourneville, tuberous sclerosis complex (TSC) is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. The aspects of TSC that most strongly impact quality of life are generally associated with the brain: seizures, developmental delay, intellectual disability and autism. However, many people with TSC are living independent, healthy lives and enjoying challenging professions such as doctors, lawyers, educators and researchers. The incidence and severity of the various aspects of TSC can vary widely between individuals—even between identical twins

The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis while improving the lives of those affected. Eligibilities: Parent of a child with TSC or individual with TSC.

Service Categories

Education, Health Care/Concerns, Information and Assistance

Geographic Areas Served

  • States AK, AL, AR, AZ, CA, CO, CT, DC, DE, FL, GA, HI, IA, ID, IL, IN, KS, KY, LA, MA, MD, ME, MI, MN, MO, MS, MT, NC, ND, NE, NH, NJ, NM, NV, NY, OH, OK, OR, PA, RI, SC, SD, TN, TX, UT, VA, VT, WA, WI, WV, WY

Languages Spoken

  • English
  • Spanish

Sites

This organization has no sites

Organization Products and Services
This organzation has not listed any products or services.

Last Update Date: 05/24/2020

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